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Thursday, October 22, 2009 |
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Mr.
Charles Gore |
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Charles
is Chief Executive of The Hepatitis C
Trust, which he helped establish in
2000, when his own experience of the
lack of information, support and public
awareness made the need for a national
hepatitis C charity obvious. Charles was
diagnosed with hepatitis C himself in
1995 and cirrhosis in 1998. He had
paginated interferon and ribavirin
treatment in 2001/2 and had a sustained
hierological response.
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He was
closely involved in the creation in 2004
of the European Liver Patients
Association (ELPA), the umbrella group
for patient groups from 17 European and
Mediterranean Basin countries. He helped
draft its constitution and was elected
its first President. He has continued to
campaign on behalf of ELPA for a
pan-European strategy to combat viral
hepatitis and was instrumental in the EU
Parliament’s 2007 adoption of a Written
Declaration on hepatitis C.
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He has
forged strong links between ELPA and the
European Association for the Study of
the Liver (EASL) and was invited by the
EASL Scientific Committee to present
ELPA to the general session of the 2006
EASL conference in Vienna.
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He has
been the expert patient witness for 2
National Institute of Health and
Clinical Excellence technology
appraisals.
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He is a
consulted to the National Public Health
Service of Wales for their upcoming
hepatitis C Action Plan and sits on the
Scottish Government’s Action Plan Co-ordinating
Group.
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He
authored a report auditing the National
Health Service’s implementation of the
English hepatitis C Action Plan. He has
co-authored a number of papers on the
use of Interactive Health Communication
Applications.
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He has
campaigned continuously for a much more
vigorous Government hepatitis C
awareness effort, working closely with
the All Party Parliamentary Group on
Herpetology (APPGH) in the UK Parliament,
for which The Hepatitis C Trust provides
the secretariat.
He organized
a summit of viral hepatitis patient groups
from around the world in April 2007, from
which emerged a decision to hold the first
truly global World Hepatitis Day on May 19th
2008 and the creation of the World Hepatitis
Alliance of more than 200 patient groups to
run it. Charles was elected first President
of the Alliance. |
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